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Carers of cancer patients have a higher mortality rate than the general population.
true
false
The Caregiver Health Effects Study found that elderly spouses of cancer patients had mortality risks that were 63% higher than non-caregiving controls. 10
Caring for a loved one can negatively affect the physical health of the carer.
The population-based study of carers found that participants reporting caregiving strain experienced poorer physical functioning and reported lower levels of perceived health than non-caregiving controls. 11
Carers experience lower levels of depression and anxiety than patients.
A meta-analysis of 21 independent studies measuring psychological distress in cancer patients and their carers concluded that patients and carers experienced similar levels of psychological distress. 12
The vast majority of carers report feeling included and respected by health professionals
Several studies on cancer carer-health professional interactions reported that many carers feel ignored by health professionals. 13
Family carers tend to have greater unmet informational and psychosocial needs than patients.
In a UK study of 233 patient-carer pairs, carers reported more unmet needs than the patients. 14 This may be due to family self-censoring important information, questions, and psychosocial needs.
Australia has introduced laws which advocate for health professionals to recognise, respect, and support family carers.
The Carer Recognition Act (2010) was developed to recognise the role and contribution of carers. It advocates for their involvement in care planning and delivery. However it does NOT override other laws protecting patient privacy, confidentiality, and informed consent. For more information visit: https://www.carergateway.gov.au/legal-financial-health-services/legal-matters
OVERALL COMPLETION
What is the purpose of eTRIO-c?
Overview of the program
Tips for using this program
Rationale: The Importance of Family Carers
ACTIVITY: Your attitudes towards family carers
The many benefits of including family in cancer care
Quote from NEJM publication
Quote from NEJM publication (2)
Quote from JAMA publication
ACTIVITY: 'True or False' on the burden and unmet needs of family carers
The impact of culture on family involvement
Contratulations
Select your response
Select what you think are the top 5 information needs of family carers
Finding out about how to reduce stress in the person with cancer’s life
Accessing information about alternative therapies
Accessing information about the person with cancer’s prognosis, or likely outcome
Accessing information on what the person with cancer’s physical needs are likely to be
Learning about the impact that caring has on working life or usual activities
Accessing information relevant to their needs as a carers/partners
Accessing information about the benefits and side effects of treatments
Accessing information about the services within the hospital
Finding out about financial support and government benefits
Learning more about cancer screening