Welcome back, Static Admin
LEARNING OUTCOMES: In this section, you will learn how to deal with the request of "don't tell my family member they have has cancer". You will learn strategies on how to sensitively and legally navigate these requests.
Family occasionally request that information be withheld from the patient, most commonly the diagnosis of cancer or a poor prognosis. 25,29
A common strategy proposed by clinicians we interviewed 25 was to refuse carers’ requests and emphasise that according to Australian law the patient must know about their illness to provide informed consent.
Categorically refusing these requests may be problematic- because non-disclosure is considered ethically and culturally appropriate in many countries. 50,51 We suggest a more nuanced approach to family requests, which while still complying with Australian Law, does not leave the family feeling alienated.
OVERALL COMPLETION
Guideline 8: Managing family requests for nondisclosure of information to the patient
Quote from a medical oncologist
Short film: Managing family requests for nondisclosure
ACTIVITY: Open text reflection based on video: How would you manage this scenario?
Short film: Managing family requests for nondisclosure (Cont.)
Open text reflection on situation
Guiding principles
8.1 Show empathy and attempt to understand and address the family carer's
8.2 Explore and respect the patient's own preferences to know information about their illness
8.3 Ensure compliance with patient informed consent laws
Summary
Select your response
Select what you think are the top 5 information needs of family carers
Finding out about how to reduce stress in the person with cancer’s life
Accessing information about alternative therapies
Accessing information about the person with cancer’s prognosis, or likely outcome
Accessing information on what the person with cancer’s physical needs are likely to be
Learning about the impact that caring has on working life or usual activities
Accessing information relevant to their needs as a carers/partners
Accessing information about the benefits and side effects of treatments
Accessing information about the services within the hospital
Finding out about financial support and government benefits
Learning more about cancer screening